|LETTER TO EDITOR
|Year : 2020 | Volume
| Issue : 1 | Page : 78-79
“Elixir of life:” Palliative care
Pratibha Vyas1, Pankaj Bhardwaj2
1 Department of School of Public Health, School of Public Health, AIIMS, Jodhpur, Rajasthan, India
2 Department of Community Medicine and Family Medicine, AIIMS, Jodhpur, Rajasthan, India
|Date of Submission||02-Oct-2019|
|Date of Acceptance||02-Apr-2020|
|Date of Web Publication||5-Jun-2020|
School of Public Health, AIIMS, Jodhpur - 342 005, Rajasthan
Source of Support: None, Conflict of Interest: None
|How to cite this article:|
Vyas P, Bhardwaj P. “Elixir of life:” Palliative care. Indian J Community Fam Med 2020;6:78-9
Being evolved a human species is all about doing struggle with the limitations of our body complying with sets of genes, cells, flesh, bones, along with chromosomes, mutations, and when enters the notion of death which is predestined for everyone leads to sorrow, gloominess, loathing, and distress. The experience of hardship during chronic and deadly diseases may vary from days to years which can be reduced if the patients and their caregivers receive/know about the palliative care.
During our study, in tertiary care hospital at Jodhpur, Rajasthan, we came across the issues about how the physical and mental side-effects of anti-cancer therapy affect the quality of life of patients. As health professionals focus on the cancer treatment itself, other individuals such as pain, anxiety, depression which leads to quality of life are not addressed promptly. That's where the need for integration of palliative care would help not only the patients but their families too from the very beginning of the diagnosis. We also observed that since a comprehensive home-based palliative care program may not be possible in that area therefore opioid availability was there in the hospital for patients suffering from pain who were at the last stage of their illness.
Going back to the historic time in India, Shanti Avedna Ashram, in Mumbai, Maharashtra, and Central India. In North India Can Support, Delhi was the first to provide with free palliative home care service. Currently, the only state setting out a good novel model for palliative is Kerala as presented by McDermott et al. where services are more widespread. There are 60 units awning a population of >12 million. The state has declared Arogyakeralam Palliative care project in concordance with community participatory services under the leadership of local self-government department. In 2008, there were 400 panchayats which has now spreads in the local bodies and extends the service in alliance with Primary Health Centre, student volunteers, local field staff etc., This expanded official intervention marks the second phase of paradigm shift.
Apart from the medical attention, rehabilitative measures are also provided to patients and family with supportive measures. Vocational training is to provide to the chronically disabled patients under the program titled “footprints” whose financial support is provided Ratan Tata Trust. Another one is Palliative Care Patient Benefit Trust, which offers educational aid to the students from disabled family. There is an inter-connected network of local self-governments, students, and community initiatives and political parties endeavoring the initiatives such as Our Responsibility to Children and Students in Palliative Care with a quality-based approach.
Since various states of North-Western India are still lacking behind in the evolution and infrastructure of palliative care home-based program and community participation, the government of different states can maneuver the Kerala model of palliative care to improve the end of life care for patients with chronic illness along with the involvement of political as well as religious organizations who can help us in widening the outreach and coverage of this novel model.
Financial support and sponsorship
Conflicts of interest
There are no conflicts of interest.
| References|| |
Khosla D, Patel FD, Sharma SC. Palliative care in India: Current progress and future needs. Indian J Palliat Care 2012;18:149-54.
] [Full text]
McDermott E, Selman L, Wright M, Clark D. Hospice and palliative care development in India: A multimethod review of services and experiences. J Pain Symptom Manage 2008;35:583-93.
Kumar S. Models of delivering palliative and end-of-life care in India. Curr Opin Support Palliat Care 2013;7:216-22.
Chacko, Anooja. Palliative Care Movement in Kerala: A Historic Overview. 2017.